#SaltingTheVibes watching the @dysautonomia@beta.mstdn.cf @dysautonomia@bird.makeup conference panels on livestream, IKYK!
Another year of excellent clinician lectures and support for patients with #POTS #OI #NCS #MECFS #MCAS #EDS and more
Miss out registering? Get conference recordings here: https://dysautonomiainternational.salsalabs.org/2025conferencerecordings/index.html
Physio this morning whilst working on my arm commented “how are your joints this loose” 
I mean I did tell him I have EDS
Anyway frozen shoulder is a little better more movement in the right ways, my wrist where he was pulling on my arm is a bit stingy but hey all in the name of progress
#eds #fibromyalgia adventures
As tee, hoodie, pin, sticker, magnet, or mug
https://www.etsy.com/shop/ChronicIllnessTees?search_query=hope
7/9 #MutualAidRequest for Lydia, an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. 
She needs help affording August rent. Please boost!
$0/400
venmo and paypal are both: @lydiawilder0
Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate. 
It's crazy how much of an overlap there is between AuDHD and EDS. There are so many "autistic zebras" out there!
How do you know if you've popped a rib "out of socket"?
I sneezed this morning and thought I pulled a muscle, but the pain is intense and hasn't let up all day. I started to wonder if it was something more when I sneezed again this evening, and there was a very clear popping sensation accompanied by even more intense pain. It's right around the area where my rib would meet the cartilage next to my sternum.
I've been unable to cough effectively all day long. Every cough, even a mild one, is super painful. Meanwhile, I feel like I'm suffocating or drowning because I can't clear my airway effectively.
If it is a dislocated rib, what do I do? How do I fix it or at least get the pain to ease up? How do I stop this from happening again?
#EhlersDanlos
#EhlersDanlosSyndrome
#EDS
#dislocation
#ChestPain
@eds
#eds anyone else unable to have kt tape on their skin, after about five hours my skin starts burning and I have to moisturise it off otherwise it tears skin 
does anyone have a solution my shoulder need support
I'm way too clumsy to have these fragile joints.
@hadon Yeah, h in hEDS is for hypermobile.
Back when I was on Twitter, I was actually mutuals with several EDS researchers, including the one who found the link between EDS and neurodivergence. Her study showed the chances of ASD for people with EDS is 7 times what it is for non-EDS folks, and a 5 times the base rate for ADHD.
#ADHD
#autism
#AuDHD
#EDS
#EhlersDanlos
#ActuallyAutistic
#AutisticZebra
@hadon The issue isn't weak muscles, but fluid and tickle in my airway. If anything, people comment that my cough can be scary loud because there's so much force behind it.
Funny that you should mention strengthening abs, though. I was born with a congenital hernia above my belly button. Basically, a hole in the connective tissue where my abs were knit together. My parents made me do sit-ups as a very young child to strengthen the surrounding muscles extra, on the doctor's advice, to give additional support in that region. It's apparently a common thing for Ehlers Danlos.
I'm a bit weird in that I don't have the general weak muscle tone that is common for EDS. If anything, it's the opposite. I'm more muscled than I have any right to be, given my sedentary lifestyle. I also have never broken a bone. But I have all kinds of other traits that line up closely, including the diagnostic criteria. I think I have a weird, unrecognized variant.
If your joints are making weird noises, make louder noises to assert dominance
Another day out with #phosh and the #OP6
- Woke up with #gnomeClocks 
- Looked up the address of the 
via #Firefox and its mobile config
- picked my way via #puremap's offline map feature
- Send #SMS via #Chatty
- Replied a toot via #tuba
- Listened to 
via #gapless
- Looked up the appointment time on #phosh's lockscreen 
plugin backed by #eds
- Checked 
pulse via a simple pacer up using #phosh's lancher plugin for the short 
No console needed.
Joints have been tightened with the impact wrench 
She was shocked at the lack of mobility in my right arm and referred me to “level 2” physiotherapy where I’ll probably get steroid injections so I can start moving the shoulder without passing out 
She checked my other major joints to make sure they were vaguely ok so that was good.
My ankles were a little unstable more than I thought
#Documentary #ChronicallyIgnored
Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support!
A Wake-Up Call To Politics, Medicine & Research
#POTS #SmallFiber #SIBO #Autoimmunity #MCAS #FQAD #FQToxicity #FlagylToxicity #EDS #hEDS #Marfan #CCI #LongCovid #LongLyme #VacInjury #LongList #LongTragedy
Film Link here: https://vimeo.com/ondemand/chronicallyignored
Wurde auf der #Gesundheitsministerkonferenz in Weimar IRGENDETWAS zu IRGENDWELCHEN der folgenden Themen #MEcfs #Longcovid #Postvac #POTS #MCAS #SFN #CCI #EDS #hEDS #FQAD #longlist #longtragedy
#complexchronicillness gesagt? Frage für Millionen Betroffene.
#irgendwieirgendwoirgendwann
4/
“The researchers identified four broad categories of harm that clinicians’ symptom invalidation can lead to:…”
#DoctorPatientRelationship #Gaslighting #chronicillness #invisibleillness #mecfs #lupus #eds #fibromyalgia #ibs #longcovid #spoonies
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
Hanna hat in der kommenden Woche Geburtstag, sie wird 36. Es wird der dritte Geburtstag sein, an dem sie - bettlägerig - verzweifelt versucht, für eine lebensnotwendige OP zu fundraisen. Sie braucht eine Fusions-OP. Hanna hat #MEcfs, #EDS, #POTS, #MCAS und #CCI, also eine instabile Halswirbelsäule. Sie braucht unsere Unterstützung. Bitte teilt ihren Fundraiser. Ich verlinke weitere Infos und (Zeitungs)Artikel zu Hanna im 
#hopeforhanna
FUNDRAISER-Link: 
https://www.gofundme.com/f/cgexg-hope-for-hanna
1/
Falls ihr die Doku "Chronisch krank, chronisch ignoriert" noch nicht gesehen habt, schaut euch den Trailer an. Keine zwei Minuten ist er lang, und ihr bekommt eine Idee.
She's a ten, but it's short for tender f*ckin' joints
