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#abelism

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Continued thread

Also I was denied personal care and #mealsonwheels by the state because I "don't have a physical #disability?" Well yes I am depressed because I'm bedridden from #cfs not vice versa which they're claiming. My doctor even wrote in my medical file I need the help. It's such 90s thinking that #MeCfs is a mental health condition but yet here we are. It means to get a shower and not lose my apartment due to my kitchen floor being dirty or bathroom or a fucking basic level of clean because I can't sweep or mop it, I have to pay for it from my #SSI $963 a month. These need to be done at least every week.
#abelism #discrimination

I was at the ear nose throat doctor yesterday and I'm in sweats, I have a hat on because even though I now have short hair I can't brush it plus it sticks straight up, plus a #mask. He asks me a question he already knows the answer to and he's not the first doctor to do this and it's happening more AGAIN after years of it not happening. "What do you do for a living?" "I'm on disability I have severe chronic fatigue syndrome." "Who do you live with?" (This is all his business WHY?) and other questions I can't remember along those lines.
What does that have to do with my ear problems?
I'm not sure if he was trying to figure out if I had serious mental problems which I have depression and anxiety 2 really common diagnosis and again has nothing to do with my ears.
I had told him a problem with my left ear and he patronized me by removing wax, but I still have the problem and zero answers so I'm going to see the regular guy at the office because he actually has real answers and takes me seriously.
#cfs #mecfs possible #abelism
Waste of time especially since the office I had to see him in was out of town.

So I'm running into a lot more #discrimination based on #disability in places you'd never think it would originate like my eye Dr and primary care dra office. My disabilities, I'm probably not wording them correctly but #confusion #ShortTermMemoryIssues and people thinking that I'm somehow CHOOSING THESE DISABILITIES AND ASSIGNING THOSE "CHOICES" AS ME **CHOOSING TO BE DIFFICULT.*** AND THAT I SHOULD ***JUST CHOSE TO STOP SUCH BEHAVIORS***
I have **VERY SEVERE #meCFS which as my physical situation has gotten worse so has the UNDESCRIBIBLY BAD #brainfog.
I'm going to tag this also #LongCovid even though I don't have that, others where the Long COVID turns to ME/CFS are going through this too.
It not only hurts indescribably but when it's in the medical field it SEVERELY impacts your care.
I haven't seen this type of stuff for at LEAST 15 years. It used to happen all the time and I blame #Trump and his #abelist philosophy and giving bullies "permission" to be who they were but closeted before. Also I think he causes others who wouldnt be to be that way especially if they own the practice. No one is there to stop them but themselves and they're not stopping themselves.
#Abelism

I've been reading "The Feminine Mystique" by Betty Friedan recently. One of the things that has stood out to me is the early American lamentation that women's intellectual potential is wasted in their subjugation. If 19th century aristocrats could see that about women, why can't their modern heirs see it about the working class?

They are so desperate to build machines that possess human intellect so that they might have more pliable slaves, yet they would squander the massive, efficient computing power of a billion unique human spirits in order to avoid sharing a fraction of a percent of their hoarded wealth.

What's more, these people are perverting large parts of mathematics and computer science in pursuit of their agenda, poisoning a new generation against the serious study of human reasoning and its relation to logic.

A ruling class that casually dismisses its people as "intellectually disabled" in order insult and suppress them is asking to be removed from power.

#feminism#math#AI
Replied in thread

@JonathanMosen

Thank you so much for drawing attention to and sharing your experience of this.

I can appreciate that it is all the more hurtful to know that the checks in the system that exist to uphold values and correct unconscious bias and systemic abelism in language failed so utterly in a speech by the Prime Minister that was intended as an apology for historic abuses. I can only imagine how it was to experience this first hand.

#Disability #Abelism #AbelistLanguage
#AccesssibleCanada #CharterOfRights #HumanRights #Blind #Canada

So, I cleaned up, sourced, and expanded out my post about fascist lawmakers using the anti-trans pogrom to go after disability rights a little bit and published it on my website; extra paragraph and a half, cleaned up some wording, nothing major changed but it has source links now.

ninaillingworth.com/2024/10/20

Nina-Bytes: A Gateway to Eliminationism

"The short story here is that, lead by noted transphobic crook fascist Ken Paxton, seventeen GOP-controlled states (fifteen of which have recently passed anti-trans legislation) are asking federal courts to strike down a recent US Department of Health and Human Services rules update that helps to protect trans people from government discrimination, arguing that gender dysphoria shouldn’t be covered by disability rights legislation. The kicker however is that these states are asking for the entire rule to be removed, even though the majority of the 130 page federal rule has nothing to do with trans care or gender dysphoria, including provisions to prevent discrimination against disabled medical patients, the rights of disabled parents in child welfare cases, and folks who’ve become disabled as a result of contracting Long Covid. In other words, fascist lawmakers are now using the anti-trans moral panic they’ve spent years drumming up, to prosecute a eugenicist agenda against the rights of disabled Americans in real time."

Nina Illingworth Dot Com | "When the revolution is for everyone, everyone will be for the revolution" · Nina-Bytes: A Gateway to Eliminationism | on NIDCNina looks at why fascist lawmakers using anti-trans arguments to go after disability rights is a predictable but ominous sign for Pig Empire society.

Some people here know my backstory of 20 years of #abuse and #neglect.

For those who don’t, see story: thecanary.co/global/world-anal

I have barely been surviving last few months so that’s where I went if you wondered.
Now my sister is coming back for the 4th time this year and she makes my life even more hellish. Nobody masks here. They’ve brought me #Covid every time and every time I get worse. My stuff is being thrown away. I can’t survive here. This is beyond anything my body can take. I keep getting worse and worse; health in free fall. Government will not help. Nowhere to go. Isolated by abusers so couldn’t make connections. They are blocking care and so many more.
These people are monsters.

Know anyone with a spare room?
Anywhere safe and quiet. I need to get out before I die of this.

I can’t do this anymore.Someone get me out to a safe place please help 🙏
I’ve tried all the DV orgs and none help disabled people. The best one offered was counselling and that’s it. I tied contacting the Minister for Prevention of Family Violence Vicki Ward and got nothing. Just an acknowledgment that she got my email. The government won’t help me I need at least one kind person out there.

I think I deserve better than abuse, neglect and life in bed in the dark with no end in sight.

In #Melbourne, #Australia.

#LongCovid #PWLC #MECFS #PwME #CommunityCare #ChronicIllness #Abelism
#DomesticViolence #Housing

@longcovid
@mecfs
@communitycare
@socialwork
@chronicillness
@melbourne
@neisvoid

This me. I am slowly dying. ⬇️

Replied in thread

@nikclayton

Quite seriously, you genuinely seem to misunderstand my point.

The fact that you view my comments as those of others as a ‘complaint to file with the management’ is indicative of the misunderstanding.

The deficiencies in the new Mastodon UI that kicked off this discussion arises from the lack of a pre consultation within the Mastodon. Given the large presence of visually limited persons on this platform, and the commitment in the community to their inclusion, the introduction of new barriers with the new UI is a genuine failure in the development process.

The concern is that a new UI was put into place in the update that brings with it features that are of value to some users, such as notification bundling valued by journalists without ensuring that these new features were not creating new barriers.

Somehow, in the development process there was quite evidently insufficient polling or engagement with the disability community, and a broader scope of users who relied of the way the old UI is set up without necessarily seeing themselves as having significant vision impairments (e.g. people with astigmatism which is very common.)

Persons with visual limitations already, on a mostly voluntary basis, provide extensive contributions of time to assist developers making better UIs and reducing barriers that are imperceptible to them. You should assume that we’re already doing this in our work, school or whatever other environments whether or not they involve the digital/IT community.

Telling us to invest more of our resources to address deficits in the development process, that could and should have been averted with an engagement and inclusion plan as workflow mapping of the development processes from the start, by ‘sending a complaint to the management’ seems to miss that point entirely.

Telling users to provide feedback via a second platform with its own diverse barriers is doubling down on the implicit abelism (which is the point I was making about GitHub and Discord).

Since your profile indicates that you work in the field and are seeking to be principled, I have continued to engage. I’m not assuming that you’re not genuinely trying to be helpful.

At this point though, I would suggest that you spend some time following some disability advocates who are more articulate than I in articulating the impact of systemic abelism. @broadwaybabyto, @meganL & @Looping speak to movement and other barriers rather than focusing on the visual. They may nonetheless be better able to help you understand why you are I are talking past one another and what a principled commitment to inclusion might involve.

#Diasability #VisionLoss #Blind #LowVision #Mastodon #Accessibility #a11y #AccessibilitySolutions #Abelism #Validiste #Abelist #AccessibleUI

@moiety

I find advertising to be abusive to people and I'll never be convinced otherwise. But I find it to be especially abusive to neurodiverse people.

I have AuADHD (Autism and ADHD for people not in the know). And having something constantly attacking my focus makes doing anything extremely difficult.

I think this most certainly also falls under abelism.

This tragic story reminds me of the lady with the two twins convicted of manslaughter, the social safety net is threadbare and allowing avoidable tragedy after tragedy. Capitalism has robbed us of our sense of community, our humanity.
Our society sees only in terms of cost, it was cheaper to let all these people rot than help them.
It didn't have to be. 😡

theguardian.com/society/2024/o
#UK #LauraWinham #Abelism #UKPOL #Ukpolitics

The Guardian · Woman who lay dead in flat for three years wrote she was ‘starving’ in diaryBy Matthew Weaver
Replied in thread

@jessta @forteller "mate" is the person I live with, not a friend, and I get to se her struggles with multiple disabilities. I wish I could say I was a tad more surprised by your "defense of the problem" answer but nothing really surprise me anymore.

You think what I describe is unique? This is the pattern. It becomes less accessible for people like her, virtually everywhere. You know what sucks? That you are right. It is easier to make low-car more accessible.

So then that really sucks, doesn't it?

Because when you use the mindset that "the previous solution made by able bodied people is not optimal so then it is somewhat ok that the next iteration isn't optimal either" then that is possibly the worst case of #abelism ever.

It actually would not take a lot. But even the little bit extra it would take, is ignored. Because "... extra cost on that"

LISTEN to people with a RANGE of #disabilities.
RESPECT their needs.
DESIGN around them.

We DON'T accept that "by a lucky change it might get better"

Replied in thread

@jessta @forteller I am so totally uninterested in a lengthy explanation of "what has and why".

The needs of disabled people are ignored.

I am not gonna sit idely while able bodied people are jumping on making their desired paradise and leave people like my mate out of it.

" makes streets that can provide a wide variety of transport options for peole with a wide range of abilities."

Yah that is so wonderfully said. You might even get a wheel chair user to test something and "this is really great", but again, when all this is words, and everything becomes more and more difficult for my mate and people like them, you don't actually care.

I have written many things about our experiences.

It is crickets from the green crowd.

So please excuse me if I get a bit upset when statements as "wide range of abilities." is pulled in because this is for most part complete bs, but a nice "selling point"

I want change. I even voted green before.

But I am not throwing disabled people under the bus.

Fuck #abelism

I know I keep repeating the same point quite a few times, but I encounter this #abelism almost every week.

Treatment for #obesity and treatment for #ADHD is met with abelist comments that people getting other treatment seem to be spared from. You need to make "extra effort!", the "medication is just part of a tool to help, the main responsibility is on YOU!"

I experienced part of the the same shit with "wegovy needs to be given as part of a complete lifestyle change!" when getting my #ADHD diagnosis.

"In addition to medication, you should see psycologist that can help you work on your organization skills and other things that is important for a person with ADHD to learn in order to cope better with life"

The meds stopped 100 voices from demanding my attention all the time. I think I spent ten times more energy being organized than most people do. I don't need more help. I know how to organize. Just needed the meds to quiet the voices.

Why toss abelist comments, you don't understand the struggles.

Imagine if you tell someone that a friend has started cancer treatment. "This is good", they say "but only if they stop smoking and eat more vegetables".

You never told them if your friend smoke, or what their diet is like. In this scenario, as a norm, anyone that get cancer treatment is told how they have stop smoking and eat more vegetables, even from complete, random strangers. No matter. Not? No meds.

This is not not acceptable, right? Anyone can get cancer, and even if they smoke, treatment is given. What else is important is between them and their Dr.

"But this cancer medication is ALSO an MS medication! They smoked! It is NOT right that they take this med away from people with MS, making their treatment more expensive!" would also NEVER be acceptable.

This is what people using #Wegovy face continuously. #Obesity is mostly caused by medical conditions. Wegovy is a treatment.

Don't toss "they also need to exercise and eat better!" at people.

They don't steal it from diabetics.

Stop #abelism.