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Time Isn’t Real Croosh#MultipleSclerosis Infusion
Colin-Roy Hunter<p>If you have any kind of <a href="https://mstdn.social/tags/neurological" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurological</span></a> condition (e.g. <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwME</span></a>, <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwFM</span></a>, <a href="https://mstdn.social/tags/pwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwMS</span></a>, etc.) or are a <a href="https://mstdn.social/tags/carer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carer</span></a> for someone with such a condition, please consider completing the anonymous 2024/5 survey.</p><p>Powered by <a href="https://mstdn.social/tags/SnapSurveys" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SnapSurveys</span></a>:</p><p><a href="https://revealingreality.welcomesyourfeedback.net/s/xpiun1" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">revealingreality.welcomesyourf</span><span class="invisible">eedback.net/s/xpiun1</span></a></p>
Time Isn’t Real CrooshPhoto w IV/Multiple Sclerosis
Time Isn’t Real Croosh#MultipleSclerosis Stuff
Time Isn’t Real Croosh<p>Gosh, I’m grateful got <a href="https://pnw.zone/tags/Valium" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Valium</span></a>. That was the easiest MRI yet. Hope the results are as straightforward and good. <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MultipleSclerosis</span></a> <a href="https://pnw.zone/tags/MRI" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MRI</span></a> <a href="https://pnw.zone/tags/claustrophobia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>claustrophobia</span></a> <a href="https://pnw.zone/tags/pwms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwms</span></a></p>
Time Isn’t Real Croosh<p>Feeling pretty solid and human about 48 hours after my <a href="https://pnw.zone/tags/rituxan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituxan</span></a> infusion for <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MultipleSclerosis</span></a>. Here’s to hoping I stay relapse free for another six months! <a href="https://pnw.zone/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a> <a href="https://pnw.zone/tags/MS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MS</span></a> <a href="https://pnw.zone/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a> <a href="https://pnw.zone/tags/rituximab" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituximab</span></a> <a href="https://pnw.zone/tags/MSSucks" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MSSucks</span></a></p>
Time Isn’t Real Croosh<p>It is almost funny how I thought I was not going to be anxious about my <a href="https://pnw.zone/tags/rituxan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituxan</span></a> infusion today. I almost made it to go time without an <a href="https://pnw.zone/tags/anxiety" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>anxiety</span></a> spike, but the IV steroids put an end to that dream. <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MultipleSclerosis</span></a> <a href="https://pnw.zone/tags/MSSucks" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MSSucks</span></a> <a href="https://pnw.zone/tags/pwms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwms</span></a> <a href="https://pnw.zone/tags/rrms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rrms</span></a> <a href="https://pnw.zone/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a> <a href="https://pnw.zone/tags/AnxietyDisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AnxietyDisorder</span></a> <a href="https://pnw.zone/tags/infusion" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>infusion</span></a> <a href="https://pnw.zone/tags/rituximab" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituximab</span></a></p>
Time Isn’t Real Croosh<p>Med appointment today for <a href="https://pnw.zone/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a>. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my <a href="https://pnw.zone/tags/MS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MS</span></a>. How do folks without <a href="https://pnw.zone/tags/FMLA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FMLA</span></a> manage? <a href="https://pnw.zone/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://pnw.zone/tags/pwms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwms</span></a> <a href="https://pnw.zone/tags/familymedicalleave" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>familymedicalleave</span></a></p>
GirlCroosh<p>I survived my first infusion! Woohoo!!! Was gone 7 hours total. I’m home now and I’m going to nap and hydrate and keep my fingers crossed for no side effects. <a href="https://universeodon.com/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a> <a href="https://universeodon.com/tags/pwms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwms</span></a> <a href="https://universeodon.com/tags/rituximab" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituximab</span></a> <a href="https://universeodon.com/tags/rituxan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituxan</span></a> <a href="https://universeodon.com/tags/fums" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fums</span></a></p>
GirlCroosh<p>Fuuuuuccckkk. First <a href="https://universeodon.com/tags/rituximab" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituximab</span></a> infusion ever is today. In an hour. I’m so nervous and all my psychosomatic bs is in full effect. <a href="https://universeodon.com/tags/rituxan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rituxan</span></a> <a href="https://universeodon.com/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a> <a href="https://universeodon.com/tags/pwms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwms</span></a> <a href="https://universeodon.com/tags/ms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ms</span></a></p>
GirlCrooshMS & Infusions
GirlCrooshMS and 🩸
GirlCrooshMultiple Sclerosis and Anxiety
GirlCrooshMultiple Sclerosis Rant
GirlCroosh<p>New research on potential influence of gut bacteria on <a href="https://universeodon.com/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a>. I find this interesting. Maybe it will lead to new treatments for those of us with <a href="https://universeodon.com/tags/ms" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ms</span></a>? <a href="https://universeodon.com/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a> <a href="https://universeodon.com/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <br><a href="https://pubmed.ncbi.nlm.nih.gov/36604748/" rel="nofollow noopener" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pubmed.ncbi.nlm.nih.gov/366047</span><span class="invisible">48/</span></a></p>
GirlCrooshMultiple Sclerosis
TamaraSellman<p><span class="h-card"><a href="https://mastodon.social/@sburall" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>sburall</span></a></span> </p><p>If you don't have a neuro already, then going through your general practitioner and working your way into a referral is your best move, but it looks like you've already done that. </p><p>I know some <a href="https://disabled.social/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a> just go straight to the ER... but it's the worst time of the year to do that, and, well, there's a Tripledemic on right now...</p><p>I'm sorry you're going through all that. You need relief! Sending you healing wishes that symptoms subside quickly!</p>
GirlCroosh<p>I vote that every time I’m too sick to work for a few days that I get to have the <a href="https://universeodon.com/tags/WorldCup" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldCup</span></a> to keep me company. Can we make that an official thing? <br>Then again, I got through my first major bout with <a href="https://universeodon.com/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a> by binging Game of Thrones. So maybe just stuff I find engaging to watch is fine…) <br><a href="https://universeodon.com/tags/worldcup2022" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>worldcup2022</span></a> <a href="https://universeodon.com/tags/distraction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>distraction</span></a> <a href="https://universeodon.com/tags/covid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>covid</span></a> <a href="https://universeodon.com/tags/covidthoughts" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>covidthoughts</span></a> <a href="https://universeodon.com/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a></p>
GirlCroosh<p><span class="h-card"><a href="https://mastodon.social/@berdandy" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>berdandy</span></a></span> I’d never seen that hashtag. I dig it. Thanks for sharing. <a href="https://universeodon.com/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a></p>
berdandy<p>I seem to be in the minority, but I vastly prefer <a href="https://mastodon.social/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a> (person/people-with-multiple-sclerosis) over <a href="https://mastodon.social/tags/MS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MS</span></a> (Microsoft?) or the lengthy <a href="https://mastodon.social/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MultipleSclerosis</span></a>.</p><p>I think I picked up that terminology habit from the ms-selfie newsletter - a good resource if <a href="https://mastodon.social/tags/PwMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwMS</span></a> haven’t heard of it. With the caveat that the author is a UK neurologist, so not always applicable: <a href="https://open.substack.com/pub/gavingiovannoni" rel="nofollow noopener" target="_blank"><span class="invisible">https://</span><span class="ellipsis">open.substack.com/pub/gavingio</span><span class="invisible">vannoni</span></a></p><p><a href="https://mastodon.social/tags/noxp" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>noxp</span></a></p>