Clip from Shannonside Northern Sound: Joe Finnegan spoke with Dr Nigel Speight about ME — from WHO recognising it in the 1960s, to a covert psychiatric campaign that denied its reality, and finally the 2021 NICE guidelines reversing harmful graded exercise advice.
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We organised this interview
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Assistant Professor Rob Wüst, who is currently working on an ME Research UK-funded project, has taken part in a video in which he answers questions from 'patients' (in Dutch with English captions).
Read more: https://bit.ly/46pW9p0
Watch the video: https://bit.ly/41a1xsC
A study led by Prof. Oltra, who has previously worked on ME Research UK-funded projects, has identified that certain markers in the blood could differentiate ‘post-COVID-19 condition’ from those with 'ME/CFS', and those with fibromyalgia.
Read more: https://bit.ly/4o6g4zv
#MEcfs #CFS #LongCovid #Fibro @mecfs @longcovid @fibromyalgia
Long-COVID, viruses and ‘zombie’ cells: new research looks for links to chronic fatigue and brain fog
Article discusses ME/CFS.
Was reproduced in a national UK newspaper, the Independent:
https://www.independent.co.uk/news/health/long-covid-myalgic-encephalomyelitis-chronic-fatigue-syndrome-b2796886.html
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Sarah-Jayne Lewis: Prevention of Future Deaths Report by coroner Debbie Rookes
Screenshot from Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Improving healthcare services for people with ME and Long Covid: Patients share their challenges, and the actions needed
Although nominally about the NHS, nearly all of the issues raised are pretty international
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
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https://www.europesays.com/us/97302/ Your Gut May Be the Key to Chronic Fatigue, Long COVID #ai #ArtificialIntelligence #BrainResearch #CFS #ChronicFatigueSyndrome #DeepLearning #GutBacteria #Health #JacksonLaboratory #LongCovid #MachineLearning #microbiome #microbiota #neurobiology #Neuroscience #UnitedStates #UnitedStates #US
Clip from Shannonside Northern Sound, Joe Finnegan spoke with Shirley McCreery about her daughter Sarah’s struggle to get diagnosed. She was given a diagnosis of CFS and bad advice to do graded exercise. Only after seeing Dr Nigel Speight did they finally get proper help.
We organised this interview.
Listen to the full 25-minute interview here:
https://www.northernsound.ie/podcasts/the-joe-finnegan-show/podcast-me-cfs-263474
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
actual good news for once - researchers have a biomarker test for ME/CFS and likely for Long Covid as well, leading to a potential therapy
Caveat, this is early stages, and like auto-immune, not all patients express the same
Still, it might put to the end the general denial of both conditions in the medical community
https://www.montrealgazette.com/news/health/article1054114.html
"Using language to describe ME"
From the Winter 2024 InterAction magazine of Action for ME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Boy I tell you what guys, the dating game is tough when you can't leave your house or talk out loud.
"CBT and graded exercise therapy studies have proven that ME/CFS and long COVID are physical diseases, yet no one is aware of that"
https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2025.1495050/full
Screenshot from July AMMES email newsletter
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
I'm rewriting the pushing from scratch. The final implementation will be very complicated and it's gotten me stuck for a month ( sometimes in a #CFS phase complex problems tend to take a while ). Why all this you wonder? Well a little detail was irking me! #gamedev #indiegame
New e-letter which makes many interesting points:
"Patients with severe ME/CFS deserve better than unproven theories" by Hilda Bastian @hildabast (writer, scientist) (note: she doesn't have ME/CFS herself)
https://www.bmj.com/content/389/bmj.r977/rr-30
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Google Translation of:
“Statement from the German Society for ME/CFS
on the statement of the German Society of Neurology of 22 July 2025”
I’ve started bringing my seat-stick out with me more, as a way *to put up my feet*.
I can feel self-conscious about putting my feet up on another chair.
With my orthostatic intolerance as part of my ME, my body doesn’t like having my feet on the floor for long.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs @longcovid #longcovid @pots #pots
Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS
https://www.medrxiv.org/content/10.1101/2025.07.23.25332049v1
Co-authored by some of the biggest names in the ME/CFS world in the US
"Many of these underlying abnormalities worsened following exercise in ME/CFS patients, but not in healthy subjects; many abnormalities reinforced each other and several were correlated with the intensity of symptoms"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
News Release 25-Jul-2025:
"Gut microbiome may predict “invisible” chronic fatigue syndrome & #longCOVID: Previously undetectable biomarkers in gut bacteria, immune responses, & metabolism offer hope for future diagnostic tools"
https://www.eurekalert.org/news-releases/1092282
Includes 4 minute video
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
"Chronic Denial: A debunked theory about chronic fatigue syndrome is being recycled to explain Long Covid—with troubling results" by David Tuller @david
https://www.openmindmag.org/articles/going-chronic
Screenshot from July AMMES email newsletter
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Book Spotlight: Then: A Conversation With Myself
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/members/members-spotlight/spotlight-book-by-elizabeth-glixman
Includes being able to read the illustrated book for free online
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
