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#chronicpain

29 posts24 participants0 posts today

*June Update*

(Ty to everyone who donated and shared last month. Unhealthy air quality lately from wildfires. Shavuot שבועות was the 1st to 3rd this month. )

Pain leaves me in bed
Struggling financially
No vehicle
HVAC and insulation leaks bad
Busted electrical outlets
Busted plumbing
Leaking roof
Water damaged floors
Mom's recovering
Struggling to get disability
Need food delivered

Still need to pay for:

  active goal 🌡️
  goal met ✅
  to be determined ⬜

• transit - $0/200 month 🌡️
• food - $0/100 month 🌡️
• medications - $12/100 month 🌡️
• medical masks - $10/10 month ✅
• home supplies - $0/50 month 🌡️
• braces - $0/7000 🌡️
• transition $0/50000 ⬜
• phone $0/350 ⬜
• computer $0/1000 ⬜
• etc

Anything helps. Please boost / share 🔁

venmo.com/u/Phoenix-Elektra

paypal.me/anonymous356

cash.app/$PhoenixElektra

#trans#enby#disabled

You know what the depressing/distressing thing about seeing your tweets flash past while @cyd migrates them to BlueSky?

That the care and treatment of #Fibromyalgia is no different in 2025 than it was in 2018. It's why I have days/weeks of just "Survival Mode", why I can't do what I want to, or get content or stories done when I hope to. Why doing literally everything - or nothing - hurts.

"Chronic" means 3 months+. I'm a couple of decades from it starting...

kneading challah with a slipped 1st rib=dizziness, a forward flexed head, and pain that imitates a myocardial infarction. I have slipping rib syndrome (since a gym accident in 10th grade; they made my 5’ 10”, size 11-feeted, torsoless self do a tucked vault over a horse, with predictable results) and the 1st rib is the worst rib. It is fixed by a physio tucking my arm under theirs, wrapping it around me, and jumping on my torso with all their weight. Today I can’t bear the thought. #chronicpain

Groundbreaking discovery of 'new' pain target brings hope for those with chronic pain

"This finding could lead to new pain relief treatments for such conditions as fibromyalgia, exercise-induced muscle pain (DOMS), rheumatoid arthritis, and chronic pain after spinal surgery."

abdn.ac.uk/news/24440/

#spoonie #ChronicPain #fibro #fibromyalgia

@spoonies

www.abdn.ac.ukGroundbreaking discovery of 'new' pain target brings hope for those with chronic pain | News | The University of AberdeenLatest News from the University of Aberdeen

Ugh...the #chronicpain is bad today, even by my skewed standards.

It feels weird to be in a position where I look at a 5 mg dose of oxycodone that my new pain doc decided to switch me to and think "Are you serious? That's a tiny dose...which part of 'I am in chronic pain' didn't make sense? My dentist gave me 10 mg when I had a bad toothache and that was just my mouth. This pain radiates from my knees and throughout my body."

I don't think I had really internalized yet that I had crossed some invisible line. It's like "Oh...no no, that's a 'normal person' dose right there my friend, and I am no longer normal. I am mighty and able to withstand pains that would send others immediately to the hospital. Fear me. I am 'Wolverine' except my healing factor doesn't do anything to dull the pain. Actually wait, that's on track for Wolverine isn't it? Shit...I'm still quote-encapsulated aren't I?"

I say this with my arms akimbo of course, however it's only in my imagination as standing that way with my knees straightened would most definitely hurt me a lot right now.

I would like to be less mighty though. This sucks.

I will work on more tactful ways to state all this as I have an appointment with them in a few hours.