Jaime Seltzer, scientific director for #MEAction, posted on LinkedIn about the recent Senate Appropriations report
Screenshot from Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Jaime Seltzer, scientific director for #MEAction, posted on LinkedIn about the recent Senate Appropriations report
Screenshot from Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
UK Government Delivery Plan for ME/CFS responses
Links:
https://www.thereforme.uk/p/campaign-update-24-responding-to
https://youtu.be/ekbEQeK0We0
Screenshot from Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
An AI Map of a Puzzling Illness:
https://batemanhornecenter.org/an-ai-map-of-a-puzzling-illness/
This blog talks about a new study published in Nature Medicine https://www.nature.com/articles/s41591-025-03788-3 that used an artificial intelligence model to study 249 people, 153 who had ME/CFS and 96 healthy controls.
Solve ME/CFS Initiative Summer 2025 Chronicle
https://solvecfs.org/wp-content/uploads/2025/07/Summer2025ChronicleFinal.pdf
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
The Emerge Australia Research Digest (#118)
https://www.emerge.org.au/researchdigest/research-digest-issue-118-2/
Includes an "Easy Read Overview" and audio version for each item
This is a different digest the one I just posted; this was posted online late
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
I'm gonna need a bigger hypothesis list.
> Our review proposes that neuroinflammation—immune activation within the brain—is one key driver of symptoms.
Scientists identify shared biological roots of #longCOVID and chronic fatigue syndrome
https://medicalxpress.com/news/2025-08-scientists-biological-roots-covid-chronic.html
From Italy:
The Use of Heart Rate Variability-Biofeedback (HRV-BF) as an Adjunctive Intervention in #ChronicFatigueSyndrome (CSF/ME) in #LongCOVID
https://www.mdpi.com/2077-0383/14/15/5363
Looks like there was some data dredging.
A placebo-controlled study would give more reliable answers.
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
The Emerge Australia Research Digest (#119) (31/7/2025)
https://www.emerge.org.au/researchdigest/research-digest-issue-119/
Includes an "Easy Read Overview" and audio version for each item
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Unusual press release on recent paper: A Q&A with Anthony Komaroff MD:
"Why do symptoms linger in some people after an infection? A conversation on post-acute infection syndromes"
https://www.eurekalert.org/news-releases/1093423
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #COVIDBrain #NeuroPASC @covid19 #Coronavirus #COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19
(Repeat)
Most Troubling Symptoms in ME/CFS & Long COVID Patients.
Bar graph shows the frequency of symptoms reported by patients with #MECFS (blue) & #LongCOVID (red)
From:
"Patient-Reported Treatment Outcomes in ME/CFS & Long #COVID"
https://www.pnas.org/doi/10.1073/pnas.2426874122
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID_19 #COVIDー19 #SARSCoV2
One week ago to August 8, #SEVEREMEDAY
I have a Pinterest board with 699 pins on #severeMECFS here https://ie.pinterest.com/tomkindlon/mecfs-severe-mecfs-mecfs-myalgic-encephalomyelitis/ that could be shared around. It mainly contains images but also links to videos & articles
You don't need to be on Pinterest
#SevereME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Interesting new research from Spain:
Metabolic adaptation and fragility in healthy 3-D in vitro skeletal muscle tissues exposed to #ChronicFatigueSyndrome and #longcovid19 sera.
https://iopscience.iop.org/article/10.1088/1758-5090/adf66c
#LongCovid @mecfs
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2
@auscovid19 #auscovid19
3/
Link to my new short blogpost:
“Three basic reasons why people with ME/CFS can’t be as “academically productive” (learn as much in an academic year) as they could be before the illness”
Extract from a new short blogpost of mine:
"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Google translation: “ME/CFS deserves more awareness in the healthcare system”
Sympathetic statement from Austrian Professional Association of Psychologists (BÖP) though it may overstate the importance of psychologists in the condition
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs_de
1/
New by Komaroff & Dantzer:
Causes of symptoms and symptom persistence in long COVID and myalgic encephalomyelitis/chronic fatigue syndrome
Free fulltext:
https://www.cell.com/cell-reports-medicine/fulltext/S2666-3791(25)00332-5
This paper contains some interesting tables and figures.
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
5-page @s4me post-exertional malaise (PEM) fact sheet
https://www.s4me.info/docs/PEM_Factsheet.pdf
Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM
-References
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid
New #cfp added for DevFest KC in November 2025.
More details at https://cfp.watch/cfps/2025-devfest-kc/.